Session Abstract and PowerPoint - Malia Fullerton

Session Abstract and PowerPoint - Malia Fullerton

Safeguarding individual interests in the conduct of genomic investigation typically devolves to the provision of “informed consent” to research participation, a legal remedy invoked at the earliest stages of the research encounter and then never subsequently revisited.  This solution becomes problematic, however, when research processes evolve and the ways in which data are used and shared change dramatically.  

Some bioethicists have begun arguing for more dynamic consent and/or ongoing modes of participant engagement that might permit a shared stake in the creation of genomic knowledge for the common good.